Ben woke up great this morning, but ended up having 2 tonic clonic (grand mal) seizures at my mother in laws house during his nap.
I left school for a minute to bring him a clonazapam and while I was gone I was able to talk with the doctor's nurse. They advised that we increase the clobazam. So we will now give him 10 mg of clobazam 3 times a day. There aren't any increases left.
The doctor said that because it's not really working that we need to start the process for the ketogenic diet. They said it takes a little time to get it all scheduled and that someone would be calling us soon.
We don't even know what to think at this point.
Leeon and I said through this whole thing that we need to just focus on right now.
Don't look too far ahead to the diet or what not - just focus on the current med at the current dose.
To take it one step at a time.
But here we are.
I hope they call tomorrow - I have lots of questions to be answered.
We are thanking God that:
~ the myoclonic and drop seizures still have not returned
~ my mother in law is able to watch Ben while we are at work
~ that my principal and team mates are so willing to help and I was able to leave work to help get Ben settled
We are continuing to pray that we will have wisdom to know what to do and for a complete healing for Ben.