Sunday, November 20, 2011

Ben's hungry

Today has been a little harder.

Ben has cried and complained of hunger all day.  His ketones are lower than they've been since we started.  That means that we are doing something wrong.

I'm going to talk with the dietitian tomorrow to see what we should do.

It's hard to see the light at the end of the tunnel in all of this.  In some ways it feels like we've exchanged one crazy for another.  We are seizure free again today (yeah!), but he's hungry, lethargic, and irritable.  We will get through this.  One step at a time.  In 2 weeks it'll look much better - I just know it!

Our pastor read Psalm 121 with us in the hospital.  I have to keep focused on His promises:

"I look up to the hills, but where does my help come from? 
My help comes from the Lord, who made heaven and earth. 
He will not let you be defeated. 
He who guards you never sleeps. 
The Lord guards you. 
The Lord is the shade that protects you from the sun. 
The sun cannot hurt you during the day, and the moon cannot hurt you at night. 
The Lord will protect you from all dangers; he will guard your life. 
The Lord will guard you as you come and go, both now and forever."

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