It looks like Ben will have to start wearing the helmet again.
Ben's had over 30 myoclonic and drop seizures so far today. They've returned a little different. There is still a distinct jerk, but they have lasted longer, his arms will stiffen, and his mouth will continue a chewing motion for about 15-20 seconds. Then when it finally stops, he collapses as if he's completly exhausted. Then a few minutes later he'll pop back up ready to go.
Speaking of the helmet, we got the bill for it today. I called the hospital to talk to them and they ran through the details and said that they had "written off $75" (I'm not sure what that means, but we'll take it!) I continued to ask her a few more questions and she told me how long I had to pay it off and then said, "But I can offer you a 25% discount". I was completly shocked and said, "Yes, please!" We are very thankful for this blessing. Now I should call the hospital to see if they can give us a discount or write off some of the amount from our last two hospital stays! :)
We have an air mattress that I set up in the living room for Ben to play on tonight and he had a drop seizure while kneeling on it. He flipped over and landed on his back. As soon as it stopped he said, "Well at least I was on the bed!" He has such a positive attitude!
We are praying specifically that the seizures will not continue to increase.
We are praising God for a financial blessing and for giving us Ben - he is our joy!