He ate another pepperoni meal for breakfast and I underestimated how much food it was in my last entry. It's actually about 16 pepperonis and about 9 peanuts and 15 ml of cream and 5 mls of oil which we pour over the pepperoni. He ate it, but needed a little more coaxing to get it down, but he did it! This morning was his first successful breakfast experience.
Lunch was a repeat of breakfast as the dietitian was busy trying to get some other recipes together. Later on I was able to work with her to create some more meals. This is going to take some time. When I see the recipe on paper, it looks fine. But then when I go to create it and actually see how much oil and butter he needs to consume, it's frustrating. Tonight's dinner had some chicken swimming in oil and butter and pepperoni that was swimming in the oil as well. It was not very palatable for him and he didn't consume all of the left over oil in the bottom of the dish of pepperoni or chicken. This will be a problem as we go along - it will make his ratio off which over time would knock him out of ketosis. But we will count tonight as a success because he tried his very best and he didn't throw up.
In fact, today was the first day that he ate all 3 meals. This is great news. :) I'm just at a loss for how to get the fat into the diet. It's a lot of fat and all the yummy carbs we usually enjoy our fats on are gone (like bread, crackers, potatoes, etc). We are going to try whipping the cream in the morning to see if we can get him to enjoy the cream more. If he will consume more cream, we can cut back on the oil and butter.
We met with the doctor and he decided that we needed to be here until tomorrow. We need his blood sugars to stabilize and for him to tolerate the diet before we can go home. Today was a huge step in the right direction as he ate all 3 meals. He told us that in about a week, we will need to increase the ratio to 3.5:1. This means adding even more fat into the diet.
Ben asked a few minutes ago, "When we go home can we go to Taco Bonos (Bueno)?" When we told him that we won't be going there again for a very long time, he cried. I think going home will be a big adjustment as he learns that this eating plan doesn't only happen at the hospital.
We are thanking God:
- that Ben ate all 3 meals and kept them down
- he was able to go for a walk outside today
- for a patient dietitian
- for support from family and friends - your notes, comments, and prayers really keep us going
- that Ben will acquire a love for whipping cream
- that I will be able to find the right combination of foods that he will like and that fit into the ratio
- that Leeon and I will be able to help Ben eat. When he is refusing, we need ideas that will make it fun. We also need to know at what point do we use tough love and have him wait until the next meal and when do we keep pushing.
- that we will have peace. We know this is the right thing, but it's difficult.
Thank you for being so encouraging. We are going to beat this thing!