Ben has had a lot of seizures today.
I think they are a combo of myoclonic and drop seizures although they are slow, not fast jerks. They are happening about once every 2 or 3 minutes.
He's having a very hard time walking in a straight line.
We gave him an extra dose of tranxene this afternoon because he was clustering so badly.
Tonight he has had 2 tonic clonic (grand mal) seizures. One lasted 2 minutes and the other 1 minute.
I watched this video a long time ago - when we first got the diagnosis of Doose. I'm going to post it here because alot of you have asked what the seizures look like. It is difficult to watch. I've never been able to capture Ben's seizures on video - mostly because when they are happening I can't think of anything else except to make them stop.
I used to be able to relate to only the beginning - the tonic clonic seizure and the scene at the breakfast table. But now we are seeing more of the rest of the video as well. We are now seeing hundreds of seizures a day.
Here's the video:
The good news is that Lauren is doing well today. She has been seizure free over a year. You can read her blog here. She has some lasting effects from the seizures. She is attending a special needs kindergarten, BUT she is seizure free!
We have hope! We just need to continue to persevere.