Tuesday, December 20, 2011

we are not out of the woods for sure...

Ben just had a 2 1/2 minute tonic clonic seizure while asleep this morning.

He hasn't had a tonic clonic since November 29th. 

I don't think I will ever get used to the sight of him seizing and his lips and hands turning blue...it's just so scary.

So, this means the clock starts over. 

It also means we have to figure out if something went wrong.  His ketones were large last night when he went to bed.  He ate normally.  He missed his nap, but had slept a lot in the car yesterday on our travels to Ft. Worth.  He was up a little late last night, but nothing extraordinary.  He took all of his meds as usual. 

The book talks about being a sleuth and figuring out why they had another seizure.  They said to go and check the toothpaste to see if they may have eaten it.  I just don't see how he got any food yesterday that he wasn't suppossed to.  They say also -

he just had another seizure...

4Rejoice in the Lord always. I will say it again: Rejoice! 5Let your gentleness be evident to all. The Lord is near. 6Do not be anxious about anything, but in everything, by prayer and petition, with thanksgiving, present your requests to God. 7And the peace of God, which transcends all understanding, will guard your hearts and your minds in Christ Jesus. Philippians 4:4-7

We just need to keep bringing him to Jesus...

1 comment:

  1. We will not stop praying and believing that this was his last. We love you.