November 14th seems like such a long time ago. We've had so many highs and lows in the past 90 or so days.
Here are some lessons we have learned on this diet:
- Pay attention in math class. seriously.
- I need to buy stock in olive oil and macadamia nuts. :)
- Dawn really does cut the grease - it's the only thing that gets the dishes really clean.
- One gram is very small - trying to measure things to the gram is a great lesson in patience.
- Forgetting is a blessing sometimes. I was coaching him through various scenarios about food before Leeon and I went on a date. I asked him, "What if Mrs. Kelly asks you if you want a chip?" He asked, "What's a chip?" :)
- The willpower of a four year should be bottled and sold. We were in the grocery store purchasing the macadamia nuts the other day and of course the aisle was filled with chips and snacks galore. He looked over at the red Doritos bag and forgetting their name asked, "Mama are 'dose' on my 'yist'?" I said, "No, Ben I'm sorry." And he said, "'Den' I'm not even going to 'yook' at 'dem'." He closed his eyes and turned his head. Oh to have that kind of willpower!
- Food is the center of attention during celebrations and is used for rewards far often that I ever realized.
- There is good everywhere you look. Friends are constantly encouraging us with their words of support.
- It's easy at times to get lost in negativity while doing the mundane tasks. If I'm not careful I begin to focus on what we have seemingly lost instead of the miracle unfolding before our eyes.
- We can do hard things - with the help of our God. It's hard to change your lifestyle. It's hard to see your child miss out. It's hard to hear your child cry of hunger (like tonight). But we get up and keep trying.
The doctors told us in December that the diet was most likely proving to be ineffective and we could quit. We didn't feel good about it.
Here we are after a month and a week or so of seizure freedom and I'm not sure what to think.
So we are going to wait. We go back to the neurologist in April. At that point, we will talk about what the options are. Maybe we can start to wean a med instead of the diet. The diet comes with it's own set of risks, complications, and side effects - but the drugs have so many more. If we had to choose, we'd like to be off the drugs.
It's the harder, less convenient choice - but overall better for him.
Tonight our resolve is to continue to fight epilepsy. We will keep going. Kids are usually off the diet in about two or three years - that means we could be as far as an 1/8 of the way down the road. We can't give up now! I posted this scripture a while ago, when we were in the midst of the struggle. But it's still true for today. "Not a day goes by without His unfolding grace."
"So we're not giving up. How could we! Even though on the outside it often looks like things are falling apart on us, on the inside, where God is making new life, not a day goes by without His unfolding grace. These hard times are small potatoes compared to the coming good times, the lavish celebration prepared for us. There's far more here than meets the eye. The things we see now are here today, gone tomorrow. But the things we can't see now will last forever." I Corinthians 4:16-18