The last time we took him in was Wednesday, Feb. 29th. I talked with the doctor that day and she said that the results came back from his previous draw and it showed a drop in his white blood cell count. The notes that the doctor left were that we would watch the see what the next round of testing said before we made any decisions.
From what little information I have, I think his count is still in the normal range - but at the absolute bottom of that range. I didn't even ask a lot of questions because I didn't want to even acknowledge that things could be not so perfect. Of all the drugs we have tried, felbatol has been the riskiest. There are some doctors that never try it. We had to sign a waiver just to get him on it.
It's not good for the blood count to be low. But my bigger concern is what if we have to wean him off of felbatol, what will that do to his seizure control?
I didn't even blog about this earlier but I'm asking for your prayers. I can feel the anxiety raising within me as we get closer to Monday. I'm going to call to see if by chance the results are in.
My heart sunk when the nurse told me about his level because it was a reminder of this battle we are fighting. But we are going to keep fighting.
Please pray that:
- his white blood cell count will maintain or even raise
- that his seizure control will be maintained
- for our hearts and minds to be filled with peace - we have to focus on right now, not the what if's
Our God is greater!