We had our appointment today with the neurologist.
Ben has gained only 2 pounds from our last visit and has grown 1 inch. He is still under the 50% for height and weight so the doctor is not concerned. Ben has refused his daily snacks lately so he's dropped 100 calories with that change alone.
We also decided that it is best to leave everything the same. We will not change any meds or the diet at this point, we will continue to monitor his progress until our next appointment in June.
We talked a little bit about some of the impulse control and trouble focusing that has become more evident. The doctor said that he's not surprised to hear this based on what his EEG showed. He said that this is part of the disorder and probably compouned by the medications he is on. He said that often once the seizures get under control, these issues present themselves more predominately because they are not "so worn out" from all the seizure activity.
We feel a bit conflicted. We are thrilled with his progress. We can't believe we will celebrate 3 months of seizure freedom in a few days. But we also feel like we aren't where we want to be.
Would you pray that God would give us peace about the medical decisions we have made? And that He would give us wisdom in parenting Ben? It's hard to be a parent.