Sunday, May 20, 2012

being vigilant

This afternoon, I came home from the grocery store with a *new* item. 

Diced pears packed in water.

We used these in the hospital and when we first started the diet but I haven't purchased them in a long time.  Ben was beyond excited to see them again.  He instantly wanted to have some, but it wasn't time to eat.

Later on, I discovered that he had gone into the fridge, opened the pears and had even taken a bite.  Augghhh!  I have absolutely no idea how much he ate.  I estimated and then measured some cream for him to drink to try to balance it out.

He was very angry.  He wanted to eat the entire little container like he used to be able to.  I talked him through how his magic diet is hard, but that he is so good at doing hard things.  He cried and then begged me to let him eat the whole thing with his dinner.  I kept telling him that he would never be able to eat the whole container while on this diet.  He kept responding, "But what about with my dinner?"  Eventually he just calmed down and let it go.  He will get to have some tonight with his tortilla chips and hopefully by then he will have forgotten about how much he can't have and be able to focus on how much he can have.

This is alarming because it's the first time he's ever 'cheated'.  This is the first time he has ever eaten something without permission.  {or is it...yikes.}

I guess I was getting complacent to the fact that he would always make a good choice and turn food away that he can't have.  It just shows that we need to continue to be vigilant. 

On a positive note, he has wanted to take a more active role in helping prepare his meals.  He loves to measure everything.  Here's a picture of him helping to flip the pancakes - his all time favorite meal.

He's standing on a stool helping with his macadamia nut pancakes. 
No worries - I was standing with him the entire time.  I only backed away to take this picture.  :)

Saturday, May 12, 2012

Tortillas!!!! {keto style}

I have discovered a new blog that has been so inspiring!!!  I can't wait for summer so that I can try some new recipes for Ben.  The same woman who wrote the book, The Keto Cookbook, has started sharing more recipes on a blog.  She is working with another woman whose blog I had discovered a few weeks ago as well. 

They have so many ideas - it's almost overwhelming at times.  Especially since the recipes the hospital gave us were mostly based on consuming a few grams of protein or carbs and just getting the fat in through butter, oil, and cream.  But I'm learning. 

It's also hard on Ben at times.  I can't really think of a preschooler who isn't a bit shy of trying new foods.  But when I try to get him to eat something new, there are lots and lots of tears.  Most times, he enjoys what I've made - if I can get him to take that initial bite.

Ok...all of that to say...these wonderful ladies have given a huge gift back to my son - tortillas!  He literally jumped up and down in the aisle of the grocery store kissing and hugging the bag of tortillas when I told him that they were for him.  Now these are not his Nana's delicious tortillas, but he doesn't even seem to care.

I use the Mission, whole wheat, carb balance tortillas.  Each tortilla weighs about 28 grams.  I have to use that same amount of olive oil and soak the tortilla strips in the oil.  Then I sprinkle salt and bake for a few minutes.  What comes out are crispy little "tortilla chips".  I combined this with a tiny bit of 'taco meat' and a few grams of cream and it almost looks like something he would have eaten before keto.  :)  That is wonderful.

Since I started making these, we have learned that he can actually have one whole tortillas and a tiny bit of another.  I increased the oil and then as a side item he can have sunflower seeds, cheese, fruit, or peanuts to lower the ratio {and no cream!}. 

He loves these things. 

Yeah for new meals! 
Yeah for perseverance! 
Yeah for other moms being willing to share what has worked for their keto kid.  :)

Monday, May 7, 2012

4 months

Today marks 4 months of seizure freedom!  I can't even describe how this makes me feel.  I was looking back at some video footage we took in January and the difference is unbelievable.  One of these days maybe I'll share some of that footage...

The difference is beyond remarkable!

This month we will also celebrate 6 months of the ketogenic diet!  Wow!  This means that we might only have 18 more months left.  Our goal is to get to the two year mark and be seizure free and med free.  We have a long road still.
I heard this song on the radio and I had to share it.  I feel like it describes how we feel so adequately. 

We never took one step alone.  His grace, His peace, His presence are ever faithful.  And He continues to be faithful still even on the days that are hard.  But tonight, we are standing on this mountaintop and rejoicing!

Standing on this mountaintop
Looking just how far we’ve come
Knowing that for every step
You were with us

Kneeling on this battle ground
Seeing just how much You’ve done
Knowing every victory
Was Your power in us

Scars and struggles on the way
But with joy our hearts can say
Yes, our hearts can say

Never once did we ever walk alone
Never once did You leave us on our own
You are faithful, God, You are faithful

Never once did we ever walk alone
Carried by Your constant grace
Held within Your perfect peace
Never once, no, we never walk alone

Every step we are breathing in Your grace
Evermore we’ll be breathing out Your praise
You are faithful, God, You are faithful
You are faithful, God, You are faithful

Thursday, May 3, 2012


I think we are finally getting used to the idea that Ben has found a workable solution to his epilepsy.  We don't seem to be holding our breath as much as before.  There are still moments when my heart literally stops when he makes an all too familiar sound or a particular look on his face appears, but thankfully it turns out to be nothing. 

It's just a little boy being a little boy.

My focus for this month is peace.  I want His peace to be prevalent in my life.  I don't want to live with a troubled and heavy heart.  I don't want to live in fear of the unknown or of the worst case scenarios.  The only solution is His peace.  I believe that He is offering the solution - maybe not the exact answer to my question - but the solution to finding rest for my heart and mind. 

His peace.