Wednesday, November 28, 2012

rolls {keto style}

I've wanted to try making these rolls for a while now, but haven't had time.  Thanksgiving kinda pushed me in that direction since I knew we would be eating rolls and Ben loves rolls.

I made both the high fiber rolls and the coconut flour rolls at the same time so I could do a side by side comparison.

They both include psylium husks which promote regularity.  Apparently, there is a recommended amount that kids can have of this per day so I was a little leery of using it, but it ended up being fine.

Ben kept calling the high fiber rolls, the chocolate ones because they were so dark.  :) 

The coconut flour rolls were much bigger.  It was surprising because it called for 100 grams of olive oil and I thought it must be a typo because that is ALOT of oil.  But the psylium husks and flour soaked it all in! 

The coconut flour ones definitely won out in our family taste test, but they were incredibly dry.  I brought one along for our Thanksgiving dinner and Ben picked at it a bit, but never really ate it entirely. 

It's nice to know that this option is available to us when he really wants a roll.

Monday, November 26, 2012

'sugar' cookies {keto style}

These cookies made a BIG difference in our Thanksgiving celebrating.  Mine did not look as great as Dawn's over at ketocook, but they were yummy!

The 'sprinkles' were so easy to make!  I just added one drop of food coloring to 2 tablespoons of truvia, mixed with a small whisk and then shook inside the container until all the little clumps were removed. 

I had a hard time figuring out the math behind adding the frosting to the cookies. The cookies were only a 2.5:1 ratio, but by adding the frosting they were a 3:1. I just had to figure out exactly how much frosting to put on each cookie as well as how many calories were in each. I forgot to weigh the dough before I started cutting the cookies. But I think I got it right, I'm not overly confident. My frosting was a little runny too, so I'm not sure how that plays into the exact fat content. In short, these are special occasion cookies. If they were to become a daily habit, I think my math would have to be a bit more precise. We never saw a decrease in ketones so I think it was pretty close.

{on a side note, we haven't seen a decrease in ketones since lowering his ratio a few weeks ago. I think this means that his body has become accustomed to making ketones. I think this means that in theory as time continues, we could lower his ratio even more and still reap the benefits of a higher ratio. Only time will tell, but a lower ratio is wonderful - we just want to wean meds first.}

I'm so excited that he will get to have this wonderful treat at his class Polar Express Party coming in December.  What a treat that will be to have cookies just like everyone else! 

Sunday, November 25, 2012

and then there were three...

medications - that is!

We have succesfully weaned Ben from clonazapam.  We can definately tell a difference in his level of alertness and others have noticed it too.

Check out this picture - look at his eyes!  They are so alert and don't have that drug hazed, half mast look that has become his norm over this past year.  I remember asking the doctor if his eyes would ever return to normal and he said there was a chance.  This picture gives me hope that they most certainly will!

We are so thankful for this postive outcome of the drug wean.  We look forward to even better news on December 17th when he goes in for the EEG.  I can't wait to discuss which drug to tackle next. 

We are beating this thing!

Thursday, November 22, 2012




My heart is overwhelmed with gratitude this morning.  My list of thankful thoughts seems endless. 

But I remember what its like to face Thanksgiving in the midst of a crisis.  This day can seem almost surreal when you feel like you are drowning in fear or desperation or fatigue.  If you are in the midst of a crisis today, hang on.  Reflecting on even the smallest blessing will increase your faith.  When your faith is big...everything else seems small.

I found these resources this week that I want to pass along...

I heard a portion of this sermon series from Charles Stanley.  It is entitled It is Good Thanks to God.  This three part series is both challenging and encouraging.

Here is a challenging post regarding thankfulness from one of my favorite bloggers.  I think I held my breathe through the entire thing - there is so much that I can relate to.   (I have lots to learn in the area of thankfulness.) 

I hope you have a wonderful Thanksgiving today. 

Saturday, November 17, 2012

it's a love/hate kinda thing

I'm trying to figure out some Thanksgiving meal ideas for Ben and I'm watching him eat a itty bitty teeny tiny amount of beans for dinner.

I've given him a 1/4 tsp measuring spoon to help him make it last a bit longer...but it breaks my heart to see him try to eat this beloved food.  He works to get every single tiny bit.  He begs for more.

Some days I wish I never re-introduced this food to him.  It's hard to understand that a tiny bit is better than none. 

We love and hate the ketogenic diet at the same time...

Wednesday, November 14, 2012

my focus for the month {perseverance}

November 14, 2011 was a day we met with great anticipation and also some dread as we entered the hospital to initiate the ketogenic dietYou can read about those early days here. 

When I think about that day, the word overwhelming is what comes to mind.
I remember thinking that there was no way we'd make it to the three month mark. 
I remember waking up in the morning and for a second I would be fine and then realizing that I had to feed Ben and it felt like a million pounds just fell on top of me. 

I never dreamed that we'd make it through 365 days of this diet. 
It didn't seem possible that Ben would be seizure free and beating this beast. 

But here we are.  We are making it.  We are surviving and life is returning to normal in many ways.  The impossible is becoming the possible. 

My focus this month is perseverance.  Because of His great love and new mercies every day of this past year, we are making it. 

God doesn't waste adversity.  Every moment of heart ache is serving a purpose and I can choose to find joy in the midst of trials because He is working.  He is developing character and instilling hope in me.  He has given us His Holy Spirit to remind us of His love and faithfulness.  We are never alone.

I still have so much to learn...
there are many other areas of my life where I need to apply this same perseverant attitude...
but I'm so thankful that He has never left us - not for a moment.

Sunday, November 11, 2012

improvements :)

We just started our last decrease in clonazapam.  In 2 weeks, we will be completely done with one of the meds!!!

Ben had a fantastic week at school! 

I'm thrilled to report that...
  • he didn't take an extra nap at school for the whole week! 
  • He ate his entire lunch in the given time slot a few days. 
  • He didn't ask to sleep on the way to school. 
  • He didn't fall asleep on the way home - we even played outside a few days after school! 
  • He begged us to take his training wheels off of his bike and is doing remarkably well with his attempts to balance a two wheeler.
  • He is eating all of his breakfast again and eats his bedtime snack again too.
  • He took shorter, more reasonable naps this weekend and has had a regular bed time as well. 
We are loving getting to see more and more of our little guy returning to us.  I know with each medication wean things will continue to improve.

We have a date set for his next EEG.  We go on December 17th and I just know that we are going to receive great news!

Thanks for continuing to pray with us.

Friday, November 9, 2012

turkey sandwich {keto style}

I have to thank my wonderful sister-in-law, Dana, for helping to create this meal.  She has a new part time job - balancing meals in the ketocalculator - anytime she wants!  :)  She compared balancing the meals to a game of sudoku on steroids.  Ha!

Anyway, we were trying to balance his peanut butter tortilla meal and ended up creating a turkey sandwich!  He has wanted one of these for quite some time now, so I was excited about it.  I've tried before but always had butter on the sandwich or the much dreaded mayo (or the even worse butter and mayo combo!). 

This meal is wonderful!  He gets a little less than 1/2 of a tortilla, about 1 1/2 slices of turkey breast, a little bit of cheese, a spoonful of butter/peanut butter mixture, some macadamia nuts, and 2 syringes of oil.  It feels normal.  It looks normal.  Sometimes I get so frustrated thinking back over the meals that we endured at the beginning of this diet.  This is such a simple meal and I don't understand why things like this weren't presented to us in the hospital.  I don't know...but I'm glad we have found a tiny bit of normal. 

Saturday, November 3, 2012

refried beans {finally}


Leeon's mom makes the most delicious homemade tortillas.  When you mix this with her homemade pinto beans, you have pure goodness.  Bean tacos were Ben's most favorite pre-keto meal. 

I wanted to introduce refried beans to him at the beginning of the diet, but I wasn't confident enough to try to formulate her recipe and the kind that come in the can have additives that aren't the keto friendliest.  I also knew that the kind in the can would taste different.  But the biggest reason I felt the need to hold off was the volume.  He was used to eating his fill and to now only get a tiny portion, I was concerned.

So, with the need to recalculate the meals, I thought I would readjust his taco meal to accommodate some beans.  We had a long talk about the changes that he would see.  I asked him if he would be ok with the fact that he only gets a tiny bit.  He couldn't wait to try them!

It was a great night in our house the other night when we finally got it all worked out.  He simply giggled while looking at the plate.  He couldn't even take a bite for the longest time because he was so excited!  But after they hit his lips, he couldn't stop thanking us and giving hi-fives.  I think he's told everyone he knows that "beans are on my list!"

Now I just need to figure out how to recreate her homemade ones for him.  :)