Monday, February 18, 2013

when wanting to quit...

It appears that Ben has developed reflux, or we have just finally figured it out.  It has caused gagging, vomiting, tummy troubles, and an overall sense of not feeling well.  We have added zantac to his daily meds, I think it's helping, but he still complains of tummy aches constantly.  We are now adding in miralax to see if that will help as well.

The diet is hard.  It's time consuming.  It's frustrating.  It's not fun  or easy on most days at all. 

But it's working for us and we are so thankful for that. 

I can't imagine doing this diet everyday without it's benefits.  But so many parents are still in the trenches.  Still fighting seizures and tweaking the diet in so many ways in search of what we have.  Those parents are incredibly amazing.

Like Ethan's parents. 

Remember Ethan

This sweet little boy is still battling seizures.  The doctors are at a loss for how to help him at this point.  They are in desperate need of a miracle.  Would you pray for Ethan and his family?  You can read more about them here.  They have started weaning depakote in hopes that maybe it will stop interfering with the diet. 

On hard days, it is easy to want to quit.  And I just said those words the other night to Leeon.  But then, I heard this scripture again and it encouraged my heart to keep going.  I hope that is encourages you as well and especially blesses Ethan's family as they persevere. 
So we're not giving up. 
How could we! 
Even though on the outside
it often looks like things are falling apart on us,
on the inside,
where God is making new life,
not a day goes by without his unfolding grace. 
These hard times are small potatoes
compared to the coming good times,
 the lavish celebration prepared for us. 
There's far more here than meets the eye. 
The things we see now are here today,
gone tomorrow. 
But the things we can't see now will last forever. 
2 Corinthians 4:16-18

1 comment:

  1. That's tough. Hang in there!

    And please relay our best wishes to Ethan's family. I tried to leave a comment but wasn't able to.