Saturday, November 30, 2013

a heavy heart

My heart is heavy after learning about the passing of sweet Matilda
Although I have never met this family, I have followed their journey from an incorrect Doose diagnosis to the terrible diagnosis of Batten Disease. 
When Ben was tested for that disease, I thought my heart would crumble...I can't imagine walking that journey.
There are just no words...just prayer that peace will cover this family and that the hope of Heaven will sustain them.

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