It's been a while since I've updated...here's a look at some of what's been going on around here:
Ben turned 7! I can hardly believe it and of course celebrating with real cake will always be special.
We participated in the Epilepsy Walk at the Ft. Worth Zoo and had a wonderful time! Can you see that sign Ben is holding?
It says 819 days (and counting) without a seizure!!!! It's wonderful that the count is no longer our focus. He is seizure free.
We had a wonderful visit with our neurologist in May. We are continuing to use felbatol only. Ben has not had a dosage increase on this med ever. He is on the same dosage as January 2012. He is basically self-weaning this med once you account for growth. So, we will hold steady.
And the best news is that it is finally summer!
I have a lot to share. Our focus has shifted from the medical side of this journey to the academic and developmental side of it all. Ben is healthy and strong - his growth curve has returned to normal. Ben is a joy to be around and tries so very hard. I will be updating the blog more often again and I hope to share my heart.